What is CONQUER—and why is it so important for scleroderma research? 🔬 In a new video shared at the 2025 SRF Patient Forum, CONQUER Steering Committee Co-Chair Dr. Shervin Assassi breaks down how this bio-registry is helping researchers better understand systemic sclerosis. Funded by the SRF, CONQUER collects clinical data and biosamples from people newly diagnosed with scleroderma, giving researchers the tools they need to discover better treatments and, eventually, a cure. Learn more about ho
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What is CONQUER—and why is it so important for scleroderma research? 🔬 In a new video shared at the 2025 SRF Patient Forum, CONQUER Steering Committee Co-Chair Dr. Shervin Assassi breaks down how this bio-registry is helping researchers better understand systemic sclerosis. Funded by the SRF, CONQUER collects clinical data and biosamples from people newly diagnosed with scleroderma, giving researchers the tools they need to discover better treatments and, eventually, a cure. Learn more about ho
5.8K viewsJul 11, 2025
FacebookScleroderma Research Foundation
Watch now: How Dr. Michael Longaker, Stanford University and SRF-Funded researcher, brings a unique perspective to solving scleroderma. Right now, you have a powerful opportunity to accelerate critical scleroderma research. Your support of the SRF Research Challenge fuels groundbreaking projects like Dr. Longaker—work that rethinks how to approach fibrosis, bringing new hope to people with scleroderma. Now more than ever, your gift helps keep promising research on track and brings us one step cl
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Watch now: How Dr. Michael Longaker, Stanford University and SRF-Funded researcher, brings a unique perspective to solving scleroderma. Right now, you have a powerful opportunity to accelerate critical scleroderma research. Your support of the SRF Research Challenge fuels groundbreaking projects like Dr. Longaker—work that rethinks how to approach fibrosis, bringing new hope to people with scleroderma. Now more than ever, your gift helps keep promising research on track and brings us one step cl
3.3K views11 months ago
FacebookScleroderma Research Foundation
Check this out: Dr. Toby Maher explains the risk factors for ILD in scleroderma 🎥 In this video, Dr. Toby Maher, Professor of Clinical Medicine at the University of Southern California and Co-Principal Investigator of CONQUEST, explains the characteristics and risk factors that can lead to interstitial lung disease (ILD) in people with scleroderma. This clip comes from our recent webinar, "Scleroderma and the Lungs: A Spotlight on ILD", presented on September 17 in recognition of ILD Day—an awa
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Check this out: Dr. Toby Maher explains the risk factors for ILD in scleroderma 🎥 In this video, Dr. Toby Maher, Professor of Clinical Medicine at the University of Southern California and Co-Principal Investigator of CONQUEST, explains the characteristics and risk factors that can lead to interstitial lung disease (ILD) in people with scleroderma. This clip comes from our recent webinar, "Scleroderma and the Lungs: A Spotlight on ILD", presented on September 17 in recognition of ILD Day—an awa
3.9K views8 months ago
FacebookScleroderma Research Foundation
Helping People with Scleroderma Stay in the Workforce | Dr. Janet Poole at #ACR2025
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Helping People with Scleroderma Stay in the Workforce | Dr. Janet Poole at #ACR2025
2.2K views8 months ago
YouTubeCreakyJoints
What is Raynaud's role in scleroderma diagnosis? 🔎 For 95% of people diagnosed with scleroderma, Raynaud’s phenomenon is reported as the first symptom. While Raynaud’s alone is not a definitive indicator, its presence alongside other scleroderma symptoms should prompt further medical evaluation, as it significantly increases the likelihood of a diagnosis. During an attack of Raynaud’s, your body limits blood flow to the hands and feet. This makes your fingers and toes feel cold and numb. It may
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What is Raynaud's role in scleroderma diagnosis? 🔎 For 95% of people diagnosed with scleroderma, Raynaud’s phenomenon is reported as the first symptom. While Raynaud’s alone is not a definitive indicator, its presence alongside other scleroderma symptoms should prompt further medical evaluation, as it significantly increases the likelihood of a diagnosis. During an attack of Raynaud’s, your body limits blood flow to the hands and feet. This makes your fingers and toes feel cold and numb. It may
3.3K viewsFeb 21, 2025
FacebookScleroderma Research Foundation
Dr. Kathryn Torok Talks Juvenile Scleroderma
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Dr. Kathryn Torok Talks Juvenile Scleroderma
82 views1 month ago
YouTubeSRFCURE
Scleroderma Awareness Month - God, you don't look sick
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Scleroderma Awareness Month - God, you don't look sick
667 views1 month ago
YouTubeScleroderma Foundation of Greater Chicago
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Now available to watch: Raynaud’s & Digital Ulcers Webinar with Dr. Tracy Frech ▶️ Earlier this week, in recognition of Raynaud’s Awareness Month, the SRF hosted a webinar on Raynaud’s and digital ulcers featuring Dr. Tracy Frech (Vanderbilt University)—and the full session recording is now available on YouTube. At the event, Dr. Frech shared expert insights on managing Raynaud’s symptoms and caring for digital ulcers. The session also included a lively Q&A filled with thoughtful question. Thank
2.5K views5 months ago
FacebookScleroderma Research Foundation
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Check out this video: Grace shares how scleroderma shaped her life and fundraises for a cure 🎥 At just eight years old, Grace Pour was diagnosed with scleroderma. These days, she is a passionate advocate for scleroderma awareness, sharing her story with medical students, organizing fundraising events, and inspiring others to get involved in the search for better treatments and, one day, a cure. Alongside her parents, Brian and Pamela, Grace is partnering with Jeep Jamboree USA to shine a light
3.3K views7 months ago
FacebookScleroderma Research Foundation
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Want to learn how to ease some scleroderma symptoms without medications? Check out this 2024 Patient Forum highlight 🎥 In this clip from the 2024 Patient Forum, Dr. Ankoor Shah (Associate Professor of Medicine, Duke University) reviews options for the non-pharmacological management of systemic sclerosis. His session covers innovative approaches for managing Raynaud's Phenomenon, digital ulcers, GI symptoms, joint pain, contractures, and fatigue. To learn more about symptom management in systemi
3.7K viewsSep 11, 2024
FacebookScleroderma Research Foundation
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It’s Scleroderma Awareness Month, and Brian is telling us why he chooses to #SayScleroderma! Why #SayScleroderma? Because not enough people know what this disease is or what it does. Because delayed awareness leads to delayed diagnoses and treatment. And because scleroderma must END. We are so grateful to Brian for sharing his scleroderma journey, and for helping spread awareness about this challenging disease. #SayScleroderma is a collaborative movement to make this disease known—which means th
9.3K viewsJun 20, 2025
FacebookScleroderma Research Foundation
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Dec 3 Panel 7 Shorts 1
5.6K views3 months ago
YouTubeBeryl Elites
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Nick Kyrgios fulfills disabled kid's bucketlist with kindness | Scleroderma explained by Adrian Portelli
6.3M viewsNov 1, 2024
TikTokitssozer
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Understanding Scleroderma: Insights and Experiences
515.4K views5 months ago
TikTokunamordidaforyouguys
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Understanding Scleroderma: Causes and Effects on Violet Moro
1.4M viewsSep 18, 2023
TikTokvioletemor
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A long road to answers: watch Rosa D. (dx 2019) tell her story of navigating her scleroderma diagnosis 🔍 For years, Rosa struggled with alarming symptoms, and like many people living with scleroderma, she was given several misdiagnoses before finally receiving an explanation. Today, Rosa is sharing her experiences to help raise awareness around scleroderma and the challenges that so many people encounter on the path to diagnosis. At the Scleroderma Research Foundation, we are dedicated to advan
233.7K views4 months ago
TikToksrfcure
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Support 'Haych' Brand by Dyson & H for Scleroderma Research
422K viewsAug 22, 2024
TikTokessendonfc
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Understanding Scleroderma: Insights and Awareness
384.4K viewsSep 5, 2024
TikTokfrankiejgrande
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Understanding Scleroderma: Insights from a Warrior
53.3K views4 months ago
TikTokmaacampaign
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Understanding Scleroderma and Raynaud's Phenomenon: Spreading Awareness
437.9K viewsMar 3, 2023
TikToksrfcure
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