2025 brought meaningful progress in our mission to find better treatments for Progeria. Children and young adults from seven countries joined the Progerinin clinical trial at Boston Children’s Hospital — an important step that could lead to a larger study next year if results are encouraging. 🩵 To keep this momentum going, The Progeria Research Foundation (PRF) needs your support: https://bit.ly/PRFSMDonate #YearEnd #clinicaltrials #findthecure #Progeria | Progeria Research Foundation
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2025 brought meaningful progress in our mission to find better treat…
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🙏Thank you to everyone who stood with The Progeria Research Foundation on GivingTuesday. Every gift - no matter the size - strengthens the global effort to change the future for children and young adults with #Progeria. Your support fuels research, expands access to treatment, and accelerates our work toward a cure. Please continue to share our posts and help us raise awareness about this ultra-rare disease. Awareness brings new supporters, and it also helps us find the still-undiagnosed childr
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🙏Thank you to everyone who stood with The Progeria Research Foun…
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The Progeria Research Foundation extends warm wishes to everyone celebrating Hanukkah, Kwanzaa, Diwali, Chinese New Year, Las Posadas, Christmas, and all the traditions that bring light and connection to this season. How ever you celebrate, we’re grateful to have you as part of our global community. 💙Give today! https://bit.ly/PRFSMDonate #Progeria #happyholidays #findthecure | Progeria Research Foundation
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The Progeria Research Foundation extends warm wishes to everyone …
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🌏 As of September 2025, this is where the 153 children and young adults with Hutchinson-Gilford Progeria Syndrome (HGPS) live, all with a progerin-producing mutation in the LMNA gene; and 82 people in the category of progeroid laminopathy (PL), who have mutations in the lamin pathway but do not produce progerin; in a total of 51 countries. Want to learn more? Visit our Find the Children website page: https://www.progeriaresearch.org/find-the-children/ 💙 Help The Progeria Research Foundation (P
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🌏 As of September 2025, this is where the 153 children and young adults …
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Progeria gene therapy is entering a new and exciting stage. After six years of rigorous research, The Progeria Research Foundation (PRF) and its scientific partners have developed a gene-editing therapy designed to permanently correct the single-letter mutation that causes Progeria. There is still important work ahead, but this marks a substantive step on the Path to CURE PROGERIA. “I‛m really excited about the gene therapy they‛re working on – when it‛s ready, so am I!” ~22-year-old Kaylee from
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Progeria gene therapy is entering a new and exciting stage. After six y…
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PRF | Sammy Basso (1995–2024) shares his inspiring thoughts and dreams.
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PRF | Sammy Basso (1995–2024) shares his inspiring thoughts and …
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It’s Valentine’s Day - and the heart ❤️ of Heart Health Month. For Progeria Research Foundation (PRF), that’s not just poetic timing. It’s deeply personal. Heart disease is what threatens the lives of every child and young adult with #Progeria. That’s why our work has always focused on the heart: strengthening it, protecting it, and giving it more time. Today, that work includes: • An FDA-approved treatment already helping hearts grow stronger • An ongoing clinical trial exploring how we can do
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It’s Valentine’s Day - and the heart ❤️ of Heart Health Month. For Pr…
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The Progeria Research Foundation’s phenomenal progress toward a cu…
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Happy DOUBLE birthday! Two of our friends in Italy 🇮🇹 share the same bir…
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🎽RACE DAY IS HERE! Support our team: https://bit.ly/PRF_2025_FR…
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It is with great pride that PRF welcomes Boston Marathon runne…
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🎽 The Progeria Research Foundation is thrilled to announce that all 10 b…
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🎽 Meet one of our most dedicated runners: Libby Maynard is a frequ…
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Find in video from 01:41Diagnosis of Progeria
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Sammy Basso, Oldest Living Person With Progeria, Dies at 28
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Meet Christina Sollecito, Executive Administrative Assistant to the Me…
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🏒In less than a week, The Progeria Research Foundation will be parti…
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It is with great pride that the Progeria Research Foundation (P…
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Tomorrow is RARE DISEASE DAY! 💙 Donate to The Progeria Research …
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$25,000 MATCH Announced❣️ Three-year-old twins Elis and Elo…
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🌸 Happy International Volunteer Day! 🌸 Volunteers are at the heart ♥️ of …
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PRF | Come with us, and help find the Cure. #CureProgeria
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🎁 Merlin from the USA turns 25 today! 🇺🇸 Happy 25th Birthday! What an incr…
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🎁 Merlin from USA turns 24 today! Happy 🎂 Birthday from all of us in y…
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Help the Progeria Research Foundation wish a Happy 12th Birt…
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🙏Thank you to this year’s Starting Banner Sponsors Leslie Gordon a…
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