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Why ME/CFS is misunderstood 👇 “I rested for 2 days to be here for 2 hours” For many people living with ME/CFS, long covid and other post-viral conditions, that’s not an exaggeration. A 2-hour event can often consume several days of their available energy. To make it possible, they may spend days conserving their energy beforehand, cancelling other activities, and carefully planning around it. Then they arrive and hear: “You look fine.” What people don’t see is what happens next. The low energy.
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Why ME/CFS is misunderstood 👇 “I rested for 2 days to be here for 2 hours” For many people living with ME/CFS, long covid and other post-viral conditions, that’s not an exaggeration. A 2-hour event can often consume several days of their available energy. To make it possible, they may spend days conserving their energy beforehand, cancelling other activities, and carefully planning around it. Then they arrive and hear: “You look fine.” What people don’t see is what happens next. The low energy.
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Thanks to everyone who sent an email, the city council made some movement, but we haven’t heard anything since. Send an updated email now!
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